Midwest Mimi

  • They Call Me Strong Because They Do Not Want to Call Me Unpaid Labor

    People call mothers like me strong, but sometimes strong is simply the word used when no one wants to say unsupported, overworked, or unpaid. Family caregiving is love, but it is also labor. When systems depend on mothers to coordinate therapies, equipment, accommodations, transportation, and safety, praising our strength does not make the work disappear.…

  • Help Has a Voicemail

    I have a list on my phone that looks like it should belong to someone who works for a human services agency. Except I do not. I am the mother. Before disabled families receive help, there is another job no one talks about: finding the help. It is a full-time, unpaid, invisible job filled with…

  • Building in the Margins

    Some weeks disappear into therapy appointments, paperwork, specialist visits, and whatever decides to break while I am trying to keep up. This is what progress looks like in a high-needs household when you are building a better future in scraps of time and leftover energy.