This year, on my birthday, I realized something quietly unsettling.
This is the last year I will be closer to forty than fifty.
That realization did not come with panic. It came with an audit. A moment of looking honestly at the life I am living and asking myself what still fits, what no longer does, and what I have been pretending not to see.
In the last few years, many good things have happened. My wife and I got married. We moved into a home we could afford that actually fits our family. We had a son. We began homeschooling our kids. My doctors and I finally found treatments that have significantly improved my quality of life.
So why did I still feel dissatisfied?
Why did I still feel like something wasn’t lining up?

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Because I was still performing.
As an autistic person, adapting is second nature to me. Masking is how I learned to stay safe, accepted, and functional in the world. I didn’t just speak. I monitored my words, my tone, my facial expression, my body language, my eye contact.
Masking, for me, feels like a constant job interview. The kind where you are trying very hard to be likable, capable, hireable. Everything is calculated. Nothing is fully relaxed.
I masked my pain.
I masked how hard the hard days really were.
I masked my illness and told myself it was temporary.
I masked dissatisfaction by insisting I should be grateful and quiet.
I masked on social media too. I shared the bright moments. The best outfits. The happiest smiles. The lake days and the laughter. I did not share the cost of those good days. The recovery. The flares. The appointments Medicaid would not cover. The quiet calculations required just to function.
From the outside, it looked like I was doing a lot. From the inside, I was exhausted.
Masking is expensive.
It costs health. When I pushed past my limits, my body always collected payment later, often in migraines, nausea, inflammation, or days of forced bed rest.
It costs relationships. Ironically, I spent so much energy trying to appear “normal” so people would like me, that I often ended up emotionally flat and depleted, seeming distant to the people I actually loved.
It costs creativity. When all your energy goes into performing, there is very little left for joy.
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There was also another performance running quietly in the background.
The old definition of success.
I grew up in a family where hard work mattered. Where success was visible and measurable. Degrees earned. Businesses built. Money made. My brother embodies that version of success, and a loud internal voice often compares me to him.
If you could just push harder.
If you could just mind over matter this.
If you worked more, you wouldn’t be here.
That voice ignores reality. It ignores disability. It ignores limits. It ignores the fact that capacity is not character.
I used to believe that my illness explained why I was here, but also meant this was the end of the story.
It isn’t.
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The real reckoning came after illness and near death forced me to slow down enough to listen.
I realized I was not dissatisfied because my life was small. I was dissatisfied because I was still trying to live someone else’s version of it.
When I stopped pretending, something shifted.
Honesty looks like this now:
It looks like honoring my body’s limits without apology.
It looks like choosing peace over proving my worth.
It looks like letting people who are determined to misunderstand me be wrong.
It looks like doing less, but choosing those things intentionally.
It means redefining success.
Success now looks like working on art, even if only for twenty minutes, sketching from bed or playing with color when my energy allows.
It looks like swimming in the lake with my kids and also bringing a chair so I can rest when I need to.
It looks like choosing sunscreen, shade, pacing, and adaptation so tomorrow doesn’t cost more than today.
It looks like presence instead of performance.

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When I stopped performing, I did lose people.
I lost those who were attached to what I could do for them.
I lost those who were uncomfortable with honesty.
I lost those who needed me to stay small or silent so they wouldn’t have to look at themselves.
What I gained was clarity.
Not everyone is your people. And that is not a failure.
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This is for anyone in midlife who lies awake at night replaying what could have been done differently. For those who feel like too much of their life has been spent performing, pleasing, surviving.
For those who feel like the window is closing.
Here is the truth I wish someone had told me sooner:
A life that is half over is still a life with half left to live.
Midlife is not a crisis.
It is a reckoning.
It is the moment you stop pretending.
The moment you get honest.
The moment you decide that the rest of your life gets to belong to you.
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